Home Health The three objectives of the national endometriosis strategy

The three objectives of the national endometriosis strategy


Improved research, early treatment and better information for the general public. These are in summary the three main axes ofe the national strategy for the fight against endometriosis launched by Emmanuel Macron on January 11. With these words pronounced by the President: “This is not a women’s problem, it is a social problem. The objective is therefore to raise awareness, diagnose and manage this debilitating and painful disease. which affects 1 in 10 women i.e. about 2 million people in France. Endometriosis is an inflammatory and chronic disease of the female reproductive system which is explained by the development of a uterine lining (the endometrium) outside the uterus, colonizing other organs (peritoneum, ovary, fallopian tube…).

First cause of infertility in France, it remains however poorly known by society, health professionals, and the world of research. People who suffer from it thus see their quality of life affected in their work environment, in their personal life and in their intimate life, without the health system currently being able to offer everyone an appropriate response. In the spring of 2021, the Minister of Health Olivier Véran had entrusted Chrysoula Zacharopoulou, MEP and doctor of gynecology, with the development of a report of proposals for a national strategy against endometriosis. “This consultation work gave rise to a report rich ine more than 150 concrete proposals in the short and medium terms. “Explains the ministry on this subject.

A diagnosis wandering of seven years on average

It is this report submitted to Emmanuel Macron which therefore designates three priority actions within the framework of this national strategy piloted by Olivier Véran. The first is to understand endometriosis, its causes and its consequences by launching a national research program. “In addition, based on the 6 national cohorts, the largest epidemiological database in the world dedicated to disease will be established and may serve as a basis for numerous national and international epidemiological studies. “says the Ministry of Health. The second priority is to mark out the diagnostic and care pathway: to provide rapid access, throughout the territory, to rapid and reliable diagnosis followed by quality care.

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Because currently, the observation is clear: diagnostic error is on average seven years (or even 10 years according to a ComPaRe Endometriosis study presented on October 2021), which causes a real delay in treatment. On this subject, the ministry stresses that “territorial sectors specific to endometriosis will be developed in each region under the aegis of the Regional Health Agencies (ARS). They will make it possible to inform, to train, to organize the diagnosis, to treat and if necessary to direct towards surgical centers. » Concretely, it will be a question of setting up an appeal and expertise center identified by region which will act as training center and dissemination of knowledge in the city and in the hospital, in connection with the associative fabric.

Better inform women in all walks of life

Finally, the increase in knowledge about endometriosis to the whole of the French population is the third emergency, as the impact of the disease on the daily life of many women is significant. To this end, the Ministry of Health wishes to create an “endometriosis reflex” among all audiences, whether at school, university, at home, in the office, and in medical circles, to make the disease better known, and to make better use of available treatments. “This better knowledge of the general public will be possible thanks to the involvement of associations, ambassadors and patients who are experts in the disease. “he estimates. Similarly, endometriosis must become a priority in the initial and continuing training of healthcare professionals.

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It is on this precise point that Endomind Association, which estimates on its site that “we are faced with a cruel lack of professionals who are sufficiently trained and able to diagnose and monitor the large number of patients affected. This has a considerable impact on the delays and the quality of the management of wandering sick and have to make many trips to access proper care. If this one welcomes the integration of the theme in the course of the medical students, it is essential according to her that the health professionals already in activity can also be trained. The association also welcomes the launch of a national information campaign for the general public, especially teenage girls.

In order to implement these proposals, Minister Olivier Véran will gather on February 14 a national steering committee which will bring together ministries (Education, Labour, etc.), doctors, researchers, associations and expert patients. For Endomind, “the announcement of this strategy represents the realization of years of hard work to make the voices of patients heard but also of intense months of collaborative work during which we mobilized to ensure that this strategy does not deviate from its priority objective to help millions of people affected by this disease. The latter nevertheless says that it is vigilant that the adequate means are allocated to all of these “ambitious” measures, and is waiting to know the budget that will be allocated to this plan.

In video: It’s in the news: endometriosis, a national priority

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